We all know the many positive aspects of the ocean and surfing lifestyle - mental, emotional, and physical - that everyone, including people living with cystic fibrosis, can benefit from. Surfing also played a role in the development of hypertonic saline, an important treatment for those living with cystic fibrosis. Pipeline to a Cure was created 12 years ago to celebrate this connection between the surfing world and people living with cystic fibrosis. Uniting surfing legends, Olympians, musicians, and generous corporations, we come together in the common goal of improving the lives of people living with CF.
About Pipeline to a Cure
12 years ago Pipeline to a Cure was founded to celebrate the positive connection between the ocean and cystic fibrosis, and no other community understands this better than surfers. Legendary surfers and watermen Laird Hamilton, Dave Kalama and Reef McIntosh have stepped up as honorary co-chairs of what has become one of the most popular and anticipated philanthropic events in Orange County CA. Now in its 12th year, Pipeline to a Cure has raised more than $4.5 million in net revenue to help find a cure for this inherited deadly disease. The ocean isn’t enough and more research and treatments are needed to ensure that everyone with cystic fibrosis can live a long and healthy life.
Event Date: July 13, 2019
Event Time: 4:30pm-11:30pm
Hyatt Regency Huntington Beach Resort and Spa: 21500 Pacific Coast Hwy, Huntington Beach, CA 92648
WHAT IS CYSTIC FIBROSIS?
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly, it’s unable to help move chloride -- a component of salt -- to the cell surface. Without the chloride to attract water to the cell surface, the mucus in various organs becomes thick and sticky. In the lungs, the mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, respiratory failure, and other complications. For this reason, minimizing contact with germs is a top concern for people with CF.
Emily Haager 1983 - 2010
Emily was such an inspiration to those who knew her or heard her tell her story at Pipeline to a Cure in prior years. We will never forget Emily’s smiling face and courageous spirit. And we will carry on our fight in her memory. One of Emily’s most endearing qualities was her enormous capacity for gratitude. She was so grateful for life, for her family and friends, and for the support of the many people who cared enough to help her and others with cystic fibrosis.
Shelby brought her love of all things Green Day to the Pipeline to a Cure family after attending the event with her parents. Shelby likes to say that CF stands for Chronically Fabulous! In 2016 Shelby candidly described her near-death respiratory failure that left her in a medically induced coma for weeks. Shelby required a double lung transplant, and after 84 days in the hospital went home in time for her 18th birthday. Despite missing the first semester of her senior year, Shelby completed two semesters of work in a few months and graduated on time with a 4.0. She achieved her goal of walking across the stage to accept her Orange Lutheran diploma. Shelby continues to inspire everyone she comes in contact with especially other people with CF.
Carly, a close friend of Emily has been involved with Pipeline to a Cure from early on and continues to speak at the VIP party each year. Carly grew up surfing with Emily and continues to seek the healing ocean waves whenever she is back in southern California. Carly is in her Junior year at Syracuse University and is on the second drug approved for cystic fibrosis, Orkambi. Carly has benefitted greatly from Orkambi and is excited to graduate with her degree in communication sciences and disorders with a speech pathology focus. Carly lives every day to its fullest and continues to advocate for people with CF and raise awareness through her company “65 Wooden Roses”